new date

Dr. Di's office called and were able to get me in for the Tethered cord surgery on July 30th.....thank goodness....not sure I can take any longer waiting!

getting worse

I have good and bad things to talk about....will talk about the bad ones first...
like to end on good notes.

my legs and bowels symptoms are getting worse. My legs are aching, hurting, can't hold them still for long....can't even lay in one position in bed for long without them going numb. My bowels...well, they aren't cooperating the way they should either contipation or uncontrollable diarrhea EVERYDAY....
can't walk for very long anymore

so....I called Dr. Di's office and let them know and Dr. Di is going to to surgery for Tethered Cord first.....for now the surgery is in August....going to try for an earlier date but he is very busy.

I am praying that this surgery will make me better...I need to have my life back...be able to do the things I was able to do before. So hard to not fall into depression....even with great things happening around me. and of course it is also hard because so many people who are around me (at times) don't understand when I am not in the best of moods....they talk about me being moody or whatever...I try my hardest not to be that way....it is really hard.

Speaking of Great things....my daughter had my first grandbaby 3 days ago....Audrey Ella....she is absolutely adorable! She just melts my heart....

update time

was reminded today that I should update.... LOL

I kind of forgot about this blog....bad I know

I actually am kind of excited because I went to see Dr. Xiao Di at the Cleveland Clinic yesterday......he heard all my symptoms, looked at my MRIs and said that I have a "fatty filum" and thinks that I may have a tethered cord. He is going to go ahead with the Chiari surgery first because my head gives me the worst pain, and then if needed we will do the tethered cord surgery later, he and I both think that it will be needed.....so HAPPY to be listened to.... He is awesome!

in other parts of my life....my daughter is due to have a baby, my FIRST grandchild in less than a month :) YEAHHH a girl.... excited for that day!!

getting prepared for my 3 youngest daughter to graduate from high school....also preparing for my oldest to graduate from college/nursing school.
and my youngest to start high school....(I have 4 daughters :)

so....if we could get our money situation in order...things would be better LOL